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When you need a little help

The links to the websites below provide a wealth of information and support for families and patients with congenital heart disease. 


Heart Link

A support group for parents and families who have a child suffering from a heart defect

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Keep The Beat

Giving hope to children with poorly hearts

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Arrhythmia Alliance

Working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias

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British Heart Foundation

Funding over £100 million of research each year into all heart and circulatory diseases and the things that cause them

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Cardiomyopathy UK

The specialist national charity for people affected by cardiomyopathy

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Children's Heart Foundation

The Children’s Heart Federation (CHF) is the leading UK children’s heart charity and works with individuals and organisations concerned with children and young people with health and educational needs due to acquired or congenital heart conditions

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Little Hearts Matter

The only charity in the UK dedicated to supporting and empowering anyone affected by the diagnosis of a single ventricle heart condition – or half a working heart

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Marfan Trust

The only Marfan charity in the UK, the Marfan Trust undertakes medical research into Marfan syndrome, supports those with the condition and raises much needed awareness

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Somerville Heart Foundation

The only UK-wide charity dedicated to supporting young people and adults born with all forms of heart conditions, known as Congenital Heart Disease (or CHD)

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Working together with individuals, families and medical professionals to offer support and information on syncope and reflex anoxic seizures

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Tiny Tickers

Improving the early detection and care of babies with serious heart conditions

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