The Adult Congenital Heart Disease (ACHD) Nurse Specialist team are a dedicated team of adult nurses who work as part of a wider multidisciplinary team to provide ongoing support to adult patients with congenital heart disease and their families. They support patients in their continuing lifelong journey with congenital heart disease.
ACHD nurses will work closely with and support a wide range of other health care professionals including (but not exclusively):
ACHD cardiology and cardiac surgery
Paediatric cardiac teams including transition
Cardiac rehabilitation and physiotherapy
Clinical psychology and mental health
Palliative care teams
Specialist pulmonary hypertension
When will you meet us?
In the surgical or cardiology wards, adult intensive care unit
At maternal medicine clinics
What does our service provide?
Support and advice throughout your cardiac journey from teenager years throughout your lifelong journey with congenital heart disease
Preparation for any hospital admissions at outpatient clinics, where we take time to explain and answer any questions with appropriate information
Education for you and your family about diagnosis, treatment, lifestyle and medication
Preparing you for procedures such as Cardiac catheter or surgical procedures
Support for patients with CHD through pregnancy
Act as an advocate for you, by supporting you in decision making and when having discussions with other members of the multi-disciplinary team.
Help with referrals to wider health care professionals such as community nurses, psychologists, dieticians, learning disability teams and cardiac support groups
Assistance with advice and education about anticoagulation (warfarin and INR)
Help with discharge planning to ensure safe and effective discharge and follow up
Telephone advice for other health care professionals involved in your care in the community such as GP’s, other specialist teams, community nurses, higher education
Support for those who have recently transitioned from paediatric services
How to contact us:
0116 250 2887
Monday to Friday – 8 am to 4 pm