Resize text:

Children's Cardiac Nurse Specialists

Who are we?

The Children's Cardiac Nurse Specialists are experienced children’s nurses, who work as part of a wider multidisciplinary team to provide ongoing support to children and their families with a heart condition. They support children and their families throughout all stages of their journey.  Including cardiac services from diagnosis, throughout childhood and into adolescence. They will support transfer to adult cardiac services in a process called “transition”.


When will you meet us?

 Antenatally within fetal clinics at the Leicester Royal Infirmary

 Within inpatient hospital settings such as the Paediatric Intensive Care Unit or wards

 During outpatient or clinic appointments

 In planning for transition to adult services


 What does our service provide?

 Support and advice throughout your cardiac journey

 Preparation for any hospital admissions at surgical and pre-assessment clinics, where we take time to explain and answer any questions with age appropriate information

 Education for your child and family about diagnosis, treatment, lifestyle and medication

 Preparation for procedures such as Cardiac catheter or operations

 We act as an advocate for you and your child, by supporting you in decision making and when having discussions with other members of the multi-disciplinary team.

 Help with referrals to wider health care professionals such as community nurses, psychologists, dieticians, play specialists  and cardiac support groups.

 Anticoagulation (warfarin and INR) teaching and training

 Support of “home monitoring” programme for patients

 Help with discharge planning and follow up

 Telephone advice for other health care professionals involved in your care in the community such as GP’s, health visitors, community nurses, school and nursery nurses.

  Preparation and handover into adult cardiac services from 12 years of age.


How to contact us

Paediatric Cardiac Nurse Specialist  working hours Monday to Friday - 8am to 4pm

0116 258 3338

For any clinical queries and emergencies (out of hours), please contact Cardiac Ward 1 Kensington Building  via switchboard (0116 258 3961).